Highland boy (5) with extremely rare disease is searching for a Ross County kit
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A Highland boy (5) with an extremely rare genetic disease is searching for a Ross County FC kit in time for his “best day ever” this weekend as a club mascot for a major clash in Aberdeen.
Conor Lowe (5) has a rare genetic disease called Autoimmune Polyglandular Syndrome Type 1 (APS-1). He is one of less than 1000 people diagnosed with the disease worldwide.
APS-1 causes Conor to suffer with conditions such as hypoparathyroidism, autoimmune hepatitis, pernicious anaemia and Addison’s disease.
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Last year, Conor and his parents made a total of 147 trips to A&E.
These constant hospital visits left Conor and his family in need of an I-STAT machine, a life-saving piece of equipment which would let him spend more time at home instead of hospital – but costing £7000.
With Conor’s mum being the Thurso Tesco store manager, it wasn’t long before every Tesco in the north of Scotland was fundraising for the brave lad’s life-saving machine.
Dingwall Tesco Superstore’s community champion Michelle Mackay was one of the key players in getting the word out about fundraising for Conor – with Dingwall Tesco alone raising £997, and an incredible group total of £12,817.
But that wasn’t all.
Ross County Football Club soon reached out, and gave Conor the opportunity to become a club mascot for the day at the Aberdeen home game on May 19 with his family.
It’s safe to say Conor was over the moon with the gift from Ross County, predicting it to be “the best day ever!”
However, due to being so late in the season, all Ross County football kits are sold out.
Dingwall community champion Michelle has kicked into action once more, to see if “any kind soul” would lend a Ross County kit to Conor for the weekend, aged 5-6.
She has a Facebook page through which she can be messaged.
